Early Communication

Communication

When I look down at my daughter with bright green eyes and crazy curly hair , I feel like might heart could burst . At first glance she looks like a typical two year old bopping around the house with her Barney doll , or what ever item or toys she chooses today .

She is smiling and very busy as she wanders through the house exploring , climbing and twirling.

She will even come over to me and stretch her arms out for some bouncing and tickling and she will giggle and it’s the sweetest sound you will ever hear .

She will come to me and she will gesture towards the fridge , you see she has no words , not even any sounds really .

I will offer her her cup and she will either
Happily receive it or throw it if it’s not what she wants . I will try to look at her but she will look away unable to look in my eyes .

The frustration will mount as I ask her what she wants and offer her a choice between two items . She will take one and she will be off again , sitting at the table is not a skill she had acquired and I wonder if she ever will .

I will repeat the words , asking her to make the sounds but it falls on seemingly deaf ears . We thought she was deaf actually for a while she didn’t respond to anything we said , not even her name . She is now responding to that , she will turn her Head and look and then quickly turn away but that is progress so I’ll take it.

She then retrieves her cup and climbs on the couch and the looks over at me . She wants to watch Barney , so I ask her do you want to watch Barney a she looks at me and then at the tv . Can you say Barney ?

She did say this before it was one of her first words but we haven’t heard in over a year .

She looks at me at say can you say Ba ? Say Ba slowly repeating the sound , silently pleading in my Mind for even a sound just one . But no sounds come out and the silence is deafening. She begins to get upset and starts flailing I retreat and put on Barney for her .

Her whole face lights up and she starts bouncing up and down while the songs start her favorite part . She is bouncing and squealing with delight . Just like that she is in her happy place .

After she resets she goes over to the door and slaps it . She wants to go outside , ok let’s get dressed . Easier said then done she does not like clothes and it is like wrestling and alligator to get her dressed .

As we are walking through the kitchen she grabs my hand and pushes it toward the counter ~~ ah she wants bubbles

She loves bubbles ! Can you say bubble ba ba bul . Nothing ~ I like I look deep into her eyes , searching looking for something , anything… She becomes Frustrated and impatient , and starts protesting and letting me know in her own way .. I want bubbles and I want them now . As I grab the bubbles I wonder if she will ever be able to say the words , to communicate .

You see I didn’t hear the words non Verbal autism yet , I didn’t know what that was and had never even heard of non verbal or a child who didn’t learn to talk .

I just longed for communication. For less frustration and more connections .

What I didnt know was she was communicating . This was her very first stage of it .

Pointing , Gesturing , pulling your hand and believe or not slapping things is all part of communication , it is considered nonverbal communication and it is the first step of communication

So as I Scurry outside with the bubbles and try to soldier on having no idea what this journey will bring and if words will even come , I remind myself she is only two she has time .

She will talk right ? Everyone learns to talk. Don’t they ?

She runs and jumps with excitement as I begin to blow bubbles . She has not a care in the world and I can’t help but laugh because she is so cute and her excitement is melting all my worries away at least for the moment

Communication is what we must fight and push for not just talking , as hard of a pill it is to swallow , there are kids who may never Speak .

We have to find a way to give them a voice and teach them to communicate .

Loveneedsnowords

communication is key

S T O P

Alyssa was in room on her Proloquo2Go app on the IPad . It is a work in progress as she is very resistant . She is open to doing activities on it but not quite for communicating . Since she was on it on her own I went in her room to see what she was doing. She wasn’t happy and got quite annoyed with me . It is a fine line between treading lightly and pushing her enough / not too much. She mostly pushed angry and frustrated buttons lol . I told her I was going to the store and asked if she wanted anything . I don’t think she fully comprehends this . I am trying to show if she picks something she will get it to help make the connection. It is hard because she doesn’t like a lot of things . I asked her If she wanted a new stuffed animal and she said no loudly . I asked if she wanted a snack and she smiled and said yes . When I preceded to have her pick a snack she would just pick the snack button and when I started to try to get her to pick something specific she was getting annoyed started yelling , whining and saying no . She then started protesting and making noises and I was like what , tell me with this , what are you trying to say and pointed to the IPad . She opened up the keyboard part of the app and she typed stop and hit it so it said stop . Oh you want mama to stop ? Yes ~ okay then not quite what I was going for but she used the iPad to communicate something so I have to take it , and stop .. I still brought home several snacks . I was pretty impressed .

keeptrying

autismstubborness

New iPad

Alyssa is doing great at speech . She is going twice a week. We got her a new IPad and we hoping to get her to use the Proloquo2Go app on it . She currently is not using her old IPad will not use at school at all. This means she has no way to communicate or for anyone to explain what’s going on , which is not good . We have worked on some other apps on it and she was willing to do it , which is a good first step . One the hardest parts of her being non verbal is that you can’t explain things to her . She doesn’t understand it benefits her and that it will give her more of a voice .
Two little boys in the speech waiting room were making fun of her . ( They were autistic twins but verbal ) one was repeating her sounds and word attempts , the other came right up to us and said you talk weird . Her face for visibly upset and she put her head on my shoulder , normally she would not be affected by this . I don’t what she understood but she understood something . She is making so many more connections lately . I know they weren’t trying to mean just curious and obviously did not have a filter . It was surprising she understood though . She went with her therapist ( she was like I’m out of here 🙃 and had a great session ) we will see what happens when we introduce the New IPad with the Proloquo2Go app … fingers crossed 😊

autismawareness

keeptrying

What does this say ?

This is something I stumbled upon accidentally .

Many times I have just randomly asked Alyssa something I know full well she doesn’t know . Why I do this?
I have no idea . It’s never intentional .

I strongly believe in expectations . Alyssa needs to have someone expect more out of her . Even If it beyond what she knows or where she is . For example ; if I don’t expect her to talk she won’t , or if I don’t expect her to understand or be able to complete a task , she won’t . Although in reality She has suprised me many times .

One night about 6 months ago me and Lexi ( my youngest daughter 13 at the time ) were sitting at the Kitchen table writing our names on a piece of paper . Alyssa kept coming over and seemed curious to what we were doing .

I had her come sit and write her name which I knew she could do and then her last name which she did . Then I randomly said can you write sun . I l knew she can copy it if you wrote it first and sun was a word she always would copy . But never on her own , well she wrote sun and about 10 other words I asked her too . Me and Lexi stared at each other in disbelief . Like what !!?Now some words were spelt wrong , but you could tell what that were .

She was actually able to write the whole alphabet . Then I decided to turn the paper over and write a word just to see what she would do . I mean there is no way she would know A: she can’t talk , B : she needs pictures or some kind of visual symbols to under stand . So I write a word she knew it , so I write another she knew it , then another I almost fell out of my chair could not believe it .

Since she has been at the new program and they don’t work on stuff like this .. She has lost some of this skill , I tried to have her write some words and she couldn’t really do it . She could only do a couple and not spelled right . But , I wrote some words down and she knew what they were .

A couple of nights later I did it again and added a few more and she knew ( most ) not all of them . Now it’s hard because she doesn’t talk and her speech is unclear so I tried some words that she could at least attempt to say .

She likes animals so I started with some simple ones . She is funny though because if she can’t say it she will tell me the sound the animal makes. She has a lot of difficulty with certain sounds the C sound especially so when I write cow she will say moo . I think it’s good though because she is finding another way to tell me what It is .

That is all I want , for her to be able to communicate in some way . This shows some potential for communication in her future . Could she learn to write or read ? This opens up a whole new avenue of communication for her . The person they said would never talk , never understand without visuals , is so severely delayed that she just can’t function past her sensory and cognitive delays .

Always believe ! Believe in your child , believe in your instinct , expect the unexpected .

This was a complete shock to us !

#nevergiveup